Blog Post

My Story

Today I’m going to share the journey of how I got to where I am today, in regards to my health.

Crohn’s Diagnosis

About 6 months after giving birth to our first child, I went into the hospital after struggling for a few months. I couldn’t eat anything without it passing right through me, and as a result, had lost a lot of weight.

They ran a bunch of tests there, and determined that I had Crohn’s disease. After a little bit of trial and error, I found a combination of medications that helped me gain weight, and put my symptoms at bay.

For the next few years I was fine…no real trouble caused by the disease, until, again 6 months following the birth of our second child. This time there was no hospital stay, and I was able to get on the same medications that helped me before to once again put the disease into remission.

And now…

I didn’t have any further issues with the disease for many years, and was actually doubting the diagnosis as some type of fluke hormonal issue, since both flare ups happened after having babies.

Starting in November of 2018, something wasn’t right. To be honest, it never even occurred to me that it was Crohn’s…I had NONE of the usual symptoms I’d had in the past. Unfortunately, I had no health insurance at this time, so there wasn’t anything I could really do about it.

Time went on, and I got so much worse. I was bloated all the time and couldn’t hardly eat. When I did eat, I had the worst stomach pains. (This should have clued me in.)

I developed an anal abscess (TMI, I know – sorry, not sorry…it’s part of the story.) I went to immediate care, and they put me on antibiotics and assured me that it would go away on it’s own in a few days.

It didn’t.

I then went to the ER – and the woman there was a total whack job. I was in a considerable amount of pain, and had a pretty sizable bulge on the left side of my abdomen. She did not listen to a word I said about any of that, and proceeded to try and pop my abscess with a needle. (I wanted to punch her in the throat.)

She advised that my other issues were due to needing to add leafy greens and nuts into my diet, as well as electrolytes.

Needless to say, none of that helped. At this point, I started having issues with my urinary tract. Stuff was coming out that had no business doing so. I saw a local doctor, who. fearing I had developed a fistula, referred me to a surgery center. That place couldn’t see me for over a month, so I was able to get a referral to a surgeon about an hour away.

After having a CT scan, they confirmed the fistula and scheduled an operation to have that repaired. The morning of that surgery, he informed me that he was going to have to take out a portion of my colon.

This was a HUGE shock. I thought this first surgery was going to solve all of my problems.

3 days after that surgery, I was right back where I started with the very same symptoms, minus the abscess.

I had a colonoscopy, and had surgery scheduled for September 23rd. Since my intestines were so inflamed, and my bladder was fused to them, they couldn’t finish the colonoscopy – so the course of this big surgery was all up in the air until I was on the operating table.

My surgeon had to put an ostomy in place. This could be temporary, I have to see a GI doctor next and have another colonoscopy. I’m worried that this colostomy could end up being permanent. But I’m not crossing that bridge until I get to it.

Next Steps

Life with a colostomy bag is not as daunting as I thought it would be. I have no stomach pains after eating, and I can actually leave the house without fear of needing to know where the nearest restroom is.

My goal now is to gain about 25 pounds, and tone my body. I haven’t done any type of exercise for months to try and conserve my calories…so while I’m severely underweight, I’m also very flabby.

I hope you’ll all continue to join me on this journey. It’s been a difficult season, but I’m very hopeful for the future. ♥️

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Author

Renee
reneecupp@gmail.com

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